It is every parent’s nightmare.
“On the morning of June 3rd, Casey (21 months) had woken up with a slight fever. She had not slept well the night before but as the day wore on, she was feeling better, eating a small lunch and spending some time playing with her grandpa,” says Ellen Young, Casey’s mom, lifelong Park Slope resident and founder of The Casey Young Foundation. “As she went down for her nap, she sat in her crib, cuddled her elephant, looked at me and said ‘night-night’ and put her head down as always. ‘Love you, sweet dreams,’ I replied as always. Casey never woke up from that nap.”
The official cause of Casey’s death is ruled to be natural and unexplained, or SUDC (Sudden Unexplained Death in Children). SUDC occurs in children over the age of 12 months and is rare with a reported incidence of 1.2 deaths per 100,000 children, compared with 54 deaths per 100,000 live births for SIDS. SUDC is diagnosed when all other causes of death have been ruled out, and at this time, it has no cure and no known way to reduce the risk.
But with herculean strength and the support of their extended family and friends, the Young family, including dad Jonathan and big sister Jordan (9), have created The Casey Young Foundation as a way to celebrate the life of their beautiful, sweet, spunky daughter and to raise money for research for The SUDC Foundation so no other family has to go through what they have been through. The Casey Young Foundation is also dedicated to Casey’s (and Ellen and Jordan’s) love of music, especially the Music Together classes they took together.
“Music Together has always been such a big part of our lives and classes were such a special time for Casey and I,” says Ellen. “Along with SUDC research, The Casey Young Foundation is raising money for Music Together scholarships for families who would otherwise not be able to attend classes.” A current class of Music Together jamming is going on at PS24 in Sunset Park, sponsored by The Casey Young Foundation.
A Day of Music For Casey
The Casey Young Foundation is having their first annual fundraiser on Sunday, April 29th from 1-5pm at Congregation Beth Elohim on Garfield and 8th Ave. It will be a celebration of Casey’s life through what she loved best – music. The event will include a day of bands, including a Music Together class at the start of the event, delicious food and wine (included in event ticket), silent auction with fantastic items, a raffle for 5 night at a villa in St. Johns and will end in a giant karaoke jam. It is also an amazing way to let this incredible, strong family know that they are not alone.
For tickets, please click here http://dayofmusicforcasey.ticketbud.com/2012 and for more information on The Casey Young Foundation and SUDC, visit rememberingcasey.com. Check out the flyer HERE.